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This speech was presented by Terri Dowty at the Community Care Live session:
'Information Overload' on May 19th 2004 pdf download
I
don’t know if anyone here
has ever played the game of putting trivial events in their life into tabloid
headlines? Things like ‘divorced mother of two phones milkman!’ and so on. Well,
a couple of weeks ago, I had a phone call from a young friend who happens to be
a care-leaver. He’d just been in to see his Connexions PA and hadn’t realised up
until then just how much information about him was stored on the database. He
insisted on seeing his file, despite the PA’s protests, and was astonished to
find that not only was every contact he had ever had with the service faithfully
recorded: they had even recorded sightings of him around the town where he
lives. Although he was annoyed, he also found it very funny.
He
said: “Hey, it made me sound like James Bond or something!” There was: ‘K called
in to collect briefcase’ and: ‘K asked to use telephone in private’ alongside:
‘saw K waiting at station’ and the portentous: ‘noticed K leaving Pizza Hut with
2 others’. Despite his amusement, K (being a sensible young man and not a spy)
immediately withdrew his permission for Connexions to share information about
him.
It’s
very easy to build up a false picture of someone from isolated facts taken out
of the context of a whole life, and to assume that because something is written
down it must be significant. It’s also easy for trivia to obscure what is really
important. As far as social care is concerned, there is no substitute for a
social worker who has experienced life – both their own, and something of
hundreds of other people’s – because only with that experience comes the wisdom
to put the trivial and the significant in their proper place.
The
subtitle of this session asks how professionals can share information within the
existing data protection laws. Well, there are three ways. One can ask
permission – surely the most moral option that respects the autonomy and dignity
of a fellow human, whatever their age. But that can be unrealistic if a child is
at risk of significant harm. In that case, the existing Data Protection Act
allows an exception to seeking permission or allowing data subjects access to
records.
The
third way is by coming under a statutory duty to share information. In other
words, if an Act of Parliament contains a section that allows the Government to
make Regulations later about the what, when and how of information-sharing, then
any duty that those Regulations impose overrides obligations imposed by the Data
Protection Act.
You
might think that this is a power that should, and would, be used sparingly, as
and when it was absolutely necessary, but that increasingly is not to be the
case. The Government is taking powers to compel the sharing of information in
circumstances where before it would have been in breach of confidence, and
failure to comply can attract a penalty. For example, Regulations that followed
the Health and Social Care Act 2001 impose a financial penalty of up to £5,000
on any person, any health professional, who fails to share patient information
as required by Regulations.[i]
Of
course, current concern focuses on the Children Bill currently before
Parliament. Clause 8 (or 23 for Wales) would empower the government by
Regulations to establish whatever database it decides, to demand that whatever
information it later specifies is placed upon it and to decide later who will
access that information. More than that, it allows them to delegate their
function, and specify in the Regulations who will make the rules about
information-sharing. All of this will be done without the knowledge or consent
of those to whom the information relates: the Bill seeks to overturn the Common
Law duty of confidentiality.
In
other words, there is nothing to stop professionals being required to place all
of the records that they hold on one central database. The government can, if it
so decides, delegate its function to a private body and professionals must then
comply with the requirements of that private body.
The
Government says that it only intends to hold ‘basic’ information and that it has
not yet decided whether the databases will be local or national. However, to
quote Lyndon B.Johnson: “You do not examine legislation in the light of the
benefits it will convey if properly administered, but in the light of the wrongs
it would do and the harms it would cause if improperly administered.”
The
problems surrounding the practicalities of constructing a database system have
already been well-aired and I don’t intend to spend much time on these today.
You will no doubt already be aware that the expression ‘at risk’ contained in
the Children Bill does not mean ‘at risk of significant harm’. It means ‘at risk
of social exclusion’. Professionals are being required to share information
simply on the basis of their subjective concerns. Quite apart from the Human
Rights and privacy implications, there are real child protection concerns.
What
happens to children at risk of harm if the database system malfunctions? The
Government doesn’t exactly have an impressive track record on databases so far,
as the sad history of the CSA, the Libra Courts System, the Immigration and
Nationality database (to name just a few) demonstrates.
How
will children genuinely at risk of harm be spotted in a welter of trivia about
SATs tests or having the wrong kind of postcode? What if the information falls
into the wrong hands – whether through carelessness, corrupt disclosure or
hacking? Where are the social workers to deal with the inevitable increase in
referrals? Professionals will, understandably, tend to over-report rather than
risk being hung out to dry by retrospective judgement. The child protection
system is already in crisis, and common sense suggests that this is hardly the
time to pile the load any higher.
What I
thought might be more helpful today, though, and, I hope, interesting, is to
flesh out some of the wider issues around the Children Bill. As I’ve already
said, context is everything! Please bear with me if this initially seems rather
remote from the immediate issue: I promise its relevance will become blindingly
obvious.
I will
say in advance that all of our research has been carried out solely on the UK or
EU Governments’ own websites – it’s all freely available information. Don’t
worry if it sounds an awful lot to take in: if you would like to read this
speech again at your leisure, you can download it from our website, or email us
for a copy. It is fully footnoted with URLs for the sources of the information,
to enable you to explore it all for yourself.
During
the 90s, it became apparent that advances in information technology had wrought
huge changes in the economies of the world. Companies were able to transfer
their operations to countries where production costs were a fraction of those in
Europe, leaving little demand for unskilled labour. EU countries began looking
at how they could survive economically. How could they compete? How could they
harness the new technology and develop new markets for it?
Finally
a plan was agreed in Lisbon in 2000. It was described as:“a ten-year strategy
to make the EU the world's most dynamic and competitive economy”.[ii]
The plans were laid for creating the ‘knowledge economy’, serviced by workers
with fluent IT skills. There are several factors considered key to this process.
The first is the need to drive up education standards and introduce the idea of
lifelong learning, in order to produce a highly-educated workforce, flexible
enough to re-train as necessary into new skills.[iii]
Social
Exclusion is viewed as a significant problem. As an EU communication outlines: “On
the downside, there are considerable risks and uncertainties associated with the
knowledge-based society, as it threatens to bring about greater inequalities and
social exclusion...almost 150 million people in the EU…face a higher risk of
marginalisation.”[iv]
Another key factor in the Lisbon Strategy is the development of ‘e-government’:
the joining-up and delivery of services via IT.[v]
Member states have already been warned that: “The
transformation of public administrations that eGovernment entails will encounter
resistance. Therefore strong political leadership and commitment is needed”[vi]
e-government is considered important for several reasons. First of all, it will
put IT into the daily life of every citizen. If all of your essential services
are supplied via computer, it’s in your interests to become IT-literate pretty
quickly. The knowledge-based economy relies on high IT literacy skills.
According to the EU Observatory’s news section, a forthcoming UK report by Sir
Peter Gershon, head of the office of government commerce, is likely to recommend
that it is made compulsory for some sections of society to conduct all of their
transactions online.[vii]
Apparently he also believes that we have precious little to show for an
investment in e-government that currently amounts to £8bn.
e-government will also allow the monitoring of progress towards the Lisbon
Strategy’s targets[viii].
These are tight, and reviewed regularly via the EU’s Spring Council Meetings.[ix]
Information held on governments’ IT systems can, for instance, be used to check
whether the education system is producing the right results, how close we are to
the target of getting 60% of women into employment or whether we are providing
effective disincentives to early retirement.
e-government will also of itself stimulate new markets in IT. Putting public
services online will increase the demand for IT services and new, better
products. As the European Commission puts it: “New services, applications
and content will create new markets and provide the means to increase
productivity and hence growth and employment throughout the economy.”[x]
How does this work? Because
“…developing services
and building infrastructures are mainly tasks for the private sector and eEurope
will create a favourable environment for private investment.”[xi]
Just before I re-cross the English Channel, I should mention that the EU has a
department dedicated to the development of electronic e-government networks.
It’s called the IDA[xii]
– or ‘Interchange of Data between Administrations’. Last year saw publication
of an IDA working paper that “…focuses
on what is required to ensure that the back-office systems of Europe's public
administrations are sufficiently interoperable to allow seamless pan-European
e-government services to be developed.”
[xiii]
The IDA paper defines interoperability as: “the means by which the
inter-linking of systems, information and ways of working, whether within or
between administrations, nationally or across Europe, or with the enterprise
sector, will occur.”
[xiv]
It goes on to say that: “e-government services do not stop at administrative
or even national boundaries” and advises that “…the interoperability
efforts, currently taking place nationally, be scaled up to work at the
pan-European level.” This document is a must-read for anyone remotely
interested in what I’m talking about today.
Meanwhile, back on the home front, the UK hasn’t exactly been sitting around. In
1999 the Government produced a White Paper[xv]
which opened up the possibilities for electronic service delivery, or
e-government, within the UK. The Cabinet Office’s Performance and Innovation
Unit was tasked with looking at how the White Paper’s ideas might be put into
practice. Their report ‘Electronic Services for the 21st Century’
followed in September 2000[xvi]
and enthused about the potential offered by joined-up, electronic services. I
particularly recommend the ‘vision’ section. It’s actually very funny, until one
remembers that this is for real. It tells a charming little story about what
life could be like if our files were held centrally and separated by electronic
gateways.
A further report came from the PIU in April 2002: ‘Privacy and Data-sharing’[xvii]
in which they outlined the key areas in which the Government could make rapid
progress in e-government.[xviii]
It’s also well worth reading this report because things suddenly begin to make a
lot of sense.
And
here’s
the point where we re-join the Children Bill. The PIU reported that joined-up
electronic service delivery could assist in identifying children at risk of
social exclusion; in sharing information within the Sure Start scheme; in
reducing the number of children missing school; in identifying families in need
of services. There is no mention of child protection, and the only ‘at-risk’ is
that of social exclusion.
Suggestions such as:
"..information sharing
across agencies to build up a holistic view of children's needs and ensure
children do not slip through the net"
or “early identification of children, young people and their families.....and
ensure they receive the support they need" may all sound very familiar. But,
no, this is not the Green Paper ‘Every Child Matters’. This comes from that PIU
Report, which was published before the Laming Inquiry even opened, and 18 months
before the Children Green Paper.
We
are being asked to believe a lot of things about the Children Bill, and quite
frankly Alice in Wonderland’s ‘six impossible things before breakfast’ springs
to mind. We are expected to believe that ‘Every Child Matters’ was a response to
the Laming Inquiry, rather than a pre-existing Government policy that was
waiting for the right cover-story. We are asked to believe that child
protection is a high priority. We are asked to ignore recent history and believe
that the most ambitious Government IT project yet is not going to come apart at
the seams. We are asked to believe that the funds are available to build a
robust system, despite the fact that local authorities have already spent
two-thirds of the available budget on delivering less than half of the
e-government objectives.[xix]
In the teeth of the evidence, we are asked to believe that there are enough
staff to meet children’s needs.
Child protection was not on the PIU agenda. Will a database that records
concerns about children as widely couched as whether they were of low
birthweight, or are easily bored, really enable someone to concentrate on
finding and protecting children at risk of harm? Or will ploughing through
endless minor ‘concerns’ merely take up valuable time? Given the sheer pressure
of workload, will practitioners be forced to abrogate responsibility entirely to
a machine and hope it doesn’t crash? Ultimately, a computer cannot go round to
a house and help a child who is distressed or in danger.
As
for Clause 8 (or 23) of the Children Bill, despite the fact that we can read its
provisions for ourselves, we are asked to ignore the evidence of our own eyes,
and believe that we are going to have local databases containing a few names and
addresses! Then why is the Government seeking wider powers? They do not draft
legislation by jotting random thoughts down and then saying “Whoops! I didn’t
really mean that!”
Personally, I’m rather tired of tricks with mirrors. Recently someone said to
me: “I’d prefer to believe this is cock-up rather than conspiracy.” But there is
no cock-up and there is no conspiracy. Rather, there is clear intention. The
information is all there for anyone who chooses to look, and I sincerely hope
that you will all do that. It’s only when we have real, hard information that we
can begin to frame the questions we really should be asking about
information-sharing, joined-up services, the Children Bill and protecting
children.
If
the notion of ‘society’ is to mean anything, then a society should be judged by
how well it serves its most vulnerable members. Child protection is a very
serious issue, and should not be relegated to the sub-category of a project that
has at its heart a very different motivation.
If
the Government is really committed to child protection, it can demonstrate its
concern by putting all available resources towards solving the staffing crisis
in children’s services. Not by throwing money at an untried IT system, which, if
the past is anything to go by, will end up consuming far more than its estimated
cost.
Terri
Dowty
Action
on Rights for Children
www.arch-ed.org
19th
May 2004
[iii] ‘Making a European Area of Lifelong Learning a
Reality’ EU Communication:
Brussels, 21.11.01
COM(2001) 678 final
http://europa.eu.int/comm/education/policies/lll/life/communication/com_en.pdf
“In
economic terms, the employability and adaptability of citizens is vital for
Europe to
maintain its commitment to
becoming the most competitive and dynamic knowledge based society in the
world. Labour shortages and competence gaps risk limiting the capacity of
the European Union for further growth, at any point in the economic cycle.
Lifelong learning, therefore, has a key role to play in developing a
coordinated strategy for employment and particularly for promoting a
skilled, trained and
adaptable workforce. This
means removing the barriers that prevent people from entering the labour
market and limit progression within it. Tackling inequality and social
exclusion is part of this.”
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